#I have invisible disabilities!
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You don't wish your disability was worse or more visible, you wish your disability was taken seriously. Please stop confusing the two, I guarantee you would not get the support you need JUST by being more severe or more visible. Please listen to visibly disabled people when we tell you it isn't better on our side
#m/cc#mine#I tried extremely hard to word this nicely because I KNOW people don't mean bad and often even know there are unique challenges#and believe me I know the challenges of invisible disability too!!#I have invisible disabilities!#but as someone who has also been at least visibly 'off' since they were 10 I am SO SICK of invisible disabilities being hailed as like#a unique extra oppression that us lucky visibly disabled people don't have to deal with#there are challenges to invisible disabilities that visibly disabled people DON'T have to deal with!#but you need to understand that *the reverse is also true*#there are MASSIVE benefits to being able to lie about your disability for example#or not dealing with the overt ableism that comes with your disability being obvious to everyone#*I do not have the option to pretend I'm not disabled.* that is never an option I have#I walk weirdly. I use a mobility aid now. my speech and face are 'off.' I lean to one side#for a long time I wore sunglasses 24/7 and often didn't make sense. I sometimes can't speak or won't react to others#for the most part people will always know that at the very least something is wrong with me#and more obviously I have people telling me they'll pray for me; telling me I can't do things I'm already in the process of doing;#wanting to shake my hand to tell me I'm an inspiration for not killing myself; giving me dirty looks for existing in public#and yes. I'm aware that this is very much an in-community issue. I know the average abled person doesn't know invisible disabilities exist#that's why there's so much awareness happening for it#but as a visibly disabled person I get SO TIRED of constantly hearing 'I wish my disability was visible :'('#it's just 'I wish I had your disability!' but from other disabled people
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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
#signal boost#please reblog#I'm so so glad this has gotten the traction that it has!#chronic pain#chronic illness#disability#fibromyalgia#cfs#chronic fаtiguе ѕуndrоmе#actually disabled#spoonie#me/cfs#cfs/me#long covid#important#invisible disability#ehlers danlos syndrome#lyme disease#chronically ill#cpunk#cripplepunk#it's a bummer that it's so US centric but if you're outside of the US you can look into similar programs#I hope that other countries have options like these#the US seems so behind when it comes to medical care and disability resources. and i mean it is#but it's good to know all of your rights as a disabled person or if you ever become disabled
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it is hard to explain but there is something so unwell about the cultural fear of ugliness. the strange quiet irradiation of any imperfect sight. the pores and the stomachs and the legs displaced into a digital trashbin. somehow this effect spilling over - the removal of a grinning strangers in the back of a picture. of placing more-photogenic clouds into a frame. of cleaning up and arranging breakfast plates so the final image is of a table overflowing with surplus - while nobody eats, and instead mimes food moving towards their mouth like tantalus.
ever-thinner ever-more-muscled ever-prettier. your landlord's sticky white paint sprayed over every surface. girlchildren with get-ready-with-me accounts and skincare routines. beige walls and beige floors and beige toys in toddler hands. AI-generated "imagined prettier" birds and bugs and bees.
pretty! fuckable! impossible! straighten teeth. use facetune and lightroom and four other products. remove the cars along the street from the video remove the spraypaint from the garden wall remove the native plants from their home, welcome grass. welcome pretty. let the lot that walmart-still-owns lay fallow and rotting. don't touch that, it's ugly! close your eyes.
erect anti-homelessness spikes. erect anti-bird spikes. now it looks defensive, which is better than protective. put the ramp at the back of the building, you don't want to ruin the aesthetic of anything.
you are a single person in this world, and in this photo! don't let the lives of other people ruin what would otherwise be a shared moment! erase each person from in front of the tourist trap. erase your comfortable shoes and AI generate platforms. you weren't smiling perfectly, smile again. no matter if you had been genuinely enjoying a moment. you are not in a meadow with friends, you're in a catalogue of your own life! smile again! you know what, forget it.
we will just edit the right face in.
#spilled ink#writeblr#warm up#i have more to say about how fundamentally fucked up it is that we associate ugliness with evil#but this is also just like. to get the first part off my chest#and as someone w/an invisible disability#....... yeahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh#(i got too mad and my brain shorted out)
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Being chronically ill is like
“It’s fine”
“It’s fine”
“It’s fine”
*complete mental breakdown because you can’t do this anymore*
“It’s fine”
#I can feel the menty b coming#when I do a lot of activity I end up with sustained flu-like symptoms until I recharge but I don’t have time to recharge for 2 more days#chronic illness#chronically ill#chronic fatigue#chronic pain#disability#disabled#lupus#fibromyalgia#pots#autoimmine disease#invisible disability#invisible illness
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a moment of silence for all us disabled ones who had to watch each of their friends move on with their lives without you and get jobs, go to school, have partners come and go, get engaged and move house etc.
shout out to my fellow struggling people who are still sitting in the same bedroom they grew up in. the ones who can't get a job, can't make new friends, can't find a partner or partners, can't move house and can't go to school.
I hope one day we can all find someone to at least sit with us in our rooms. I see you and I understand... and I'm sorry we can't be that person for each other
#hell o void#hell o hadal#disabled#disability#invisible disability#nuerodivergent#nuerodiversity#mental health#agoraphobia#depression#anxiety#chronic pain#chronic fatigue#autistic#autism#i know this applies to more people but i am too tired to think of more tags and i really need to stop posting and do other things#but this is something i struggle with constantly and cant get over so#about#it hurts even more knowing that my friends who have done this are also disabled#like.... what do you mean they can overcome their disabilities and have lives why the fuck cant i do that
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this disability pride month you can help disabled people by continuing to mask up, using appropriate masks (KN95 or N95) and appropriate masking technique (wash your hands before and after putting it on, don't touch the front, make sure there's no gaping) 🫧
#rambles#this is aimed at those who can both afford to mask / have resources available#& are physically able to#I personally am at risk while masking but still aim to as much as possible#because i am. equally at risk to another group of things when not masking !#yay me#anyway#disability posting#disabled#disability#chronically ill#chronic illness#invisible disability#invisible illness#dynamic disability#neurodivergent#masking#mask up#covid#long covid
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"i wish i could unmask wherever i went." "i wish i was visibly disabled."
Okay, fine.
Do you also wish you were pulled out of class and asked if you've taken illegal substances because you weren't masking?
Do you wish you were just not allowed in class sometimes because of your symptoms being disruptive?
Do you wish parents would pull their children away from you because you walk funny and make weird noises?
Do you wish your parents got sympathy glances whenever youre out in public with them?
Do you wish all this? Or do you wish you were more accepted by society?
EDIT: i think im not very good at explaining myself, this post is targeted at people who say "i wish i was visibly disabled" and then go on to deny that visibly disabled people experience a lot of ableism and danger because of it. this isn't targeted at people who wish they didnt have to hide themselves.
#i cannot mask at all. i have brain damage. i cant pretend my brain is intact because it isnt and wont be#it makes me so upset when i see ppl say they wish they could unmask everywhere because masking is a normal social behaviour to an extent#everyone modifies their behaviour to an extent to fit the scenario#but some people cant judge situations or change their gait or change their speech impediments even if it gets them in trouble#neurodiverse#neurodiversity#neurodivergent#neurospicy#neurodiverse stuff#masking#autism#autism masking#adhd#brain damage#brain injury#tbi survivor#disabled#disability#chronically ill#chronic illness#cripplepunk#cpunk#neuropunk#physical disability#physically disabled#disabilties#invisible illness#invisible disability
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shoutout to all the fellow disabled people who spread awareness and advocacy even when they have no energy to do so, I see you, I love you, and you are so deeply appreciated. your story has the potential to be someone else's survival guide.
#I might have gastroparesis and reading about the firsthand info online is making me feel better#this shit is terrifying#physical disability#chronic illness#spoonie#invisible disability#disabled#chronic pain#actually disabled#pots#chronically ill#cripple punk#hypermobile ehlers danlos#ehlers danlos syndrome#gastroparesis#feeding tube#ileostomy#wheelchair#cane user#mobility aid#mcas#cfs#chronic fatigue syndrome#chronic nausea#tummy ache survivor#diabetes#diabetic#brain injury#quadriplegic#just ibs things
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So now in the latest saga of Lando Norris Trying to Make Me Hate Him, we have Lando *checks notes* being shitty towards other drivers that had heatstroke after Singapore.
First of all, someone should introduce rich boy to the idea of “class consciousness”. Instead of tearing down his fellow drivers for health issues after the race (that he implied he was also feeling), he should direct his ire to the people in charge.
Why not use the collective power they have as drivers to influence a change? That’s the entire reason for a driver’s union.
Why is he denigrating people’s health issues (which he is in no position to judge as he is not a medical professional), when instead he could be amplifying their experience and his own to call for change.
Lando sees other people suffering and says, “why do they get a free pass, I suffered too.” He sees their health being put at risk and he judges the driver and the team for looking out for them.
Max, his own best friend, told him “you don’t know what they’re going through.” And he doesn’t, Mercedes has been having a problem with their cockpit getting too hot even before Singapore. There’s been no indications that that has been fixed.
But instead of saying, “yeah maybe you have a point.” Lando instead says, “they don’t know mine.” Again, here it’s either Lando gets the focus or no one should. It has to be about him.
And either way, if he does feel like this…he doesn’t need to say it.
It’s perfectly normal to keep shitty opinions to yourself, but he seems to lack a certain level of self-awareness and discernment for that level of self-control.
Lando Norris, I tried very hard but you’ve made me not like you.
#f1#formula 1#Lando Norris#George Russell#Lewis Hamilton#Mercedes#singapore gp 2024#Anti Lando Norris#for the blacklist#also probably#tw ableism#I have ‘invisible’ disabilities. if everyone had the perspective of Lando my life would be demonstrably worse
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Thinking about Charles Xavier, who is simultaneously aware of everyone but at the same time not because if he was himself to the fullest people find him upsetting and rude and nosy
Thinking about his unshakable sense of morality, right and wrong and justice that he formed at the age of 9 and has kept ever since, with modifications along the years but those core values remain
Thinking about how the overstimulation of a thousand voices in his head drove him to self medicate to the point of nearly addiction
Thinking about how he has difficulty reading people when his power is not in use, ending up saying the worst things without meaning to upset no one
Thinking about how everyone should be “mutant and proud” except Charles over there that is too passing to be a mutant but too weird to be a human and simultaneously his mutation, the way his brain is fucking wired, is too inconvenient for everyone around him mutant and human alike to accept
Charles Xavier they would never make me hate you. You and your autism telepathy
#x men#charles xavier#I’m firm in this belief#Charles is the poster boy of invisible disability in first class and I mean it#no one lets him stretch his mutantion than they have the audacity to be mad that he didn’t understand their weird subtext#Raven I’m looking directly at you#if you want to be clear about your feelings with your brother but doesn’t want him in your head FUCKING TALK TO HIM#he is a mind reader that won’t read your mind!!! he has no way of knowing shit#because as the movie showed us#Charles and social cues have never been in a room together ever#Erik put one singular helmet and Charles was absolutely fumbling that social interaction#sure it was part stress of the situation but everyone agrees that telling the holocaust survivor#“they are only following orders” was the greatest misreadings of a situation ever#Charles also has a emphaty problem born also from his mutation#he has a lot of it#many time to his own detriment#because he has seen and experienced everyones shoes#he has walked them all#so he can’t separate the idea that someone so rich as another person deserving of extre punishment#even when that is the only option available#do you think his telephaty gave him identity issues?#what do you think is Charles Xavier perception of self?
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too tired for a whole post but i will say, if I had a nickel for every time I watched a show where a disabled character gets treated like a helpless sensitive baby despite being an adult who’s blatantly characterized as independent in spite of how they are perceived by others, temperamental, deeply determined and sometimes very bitter about their perception, I’d have two nickels, which isn’t a lot but one is more than enough for me to be fucking sick and tired of it
#cal.txt#‘we need more disability representation’ we fucking have it and you’re calling them babies#YOU can’t handle it you just Can’t even be normal about a character with fucking invisible disabilities#fandom ableism#spn#supernatural#spn fandom#jack kline#autistic jack kline#arcane#arcane fandom#viktor arcane#like it’s not that hard chat . it is Not hard whatsoever#oh and not to mention an important person in their life stating that they are loved for themselves and not in spite of themselves … cough#sigh#parallels#I guess
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dont u love it when ur job punishes u for being disabled, in legal ways? routes that make it near impossible for u to travel down, but it technically is possible u could do it, "you just have to try hard enough and do xyz and lmnop! Not so bad!"
#not doing okay#i will have to resign myself soon to become job zombie if i want to keep my job#chronic pain#chronic illness#chronically ill#disabled#wheelchair#chronic fatigue#spoonie#actually disabled#cripple punk#invisible illness#myk talks#ada#ada laws
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casting a spell to combat the fatigue today. I will have energy to do the things I need to do. I will have energy to make it to the kitchen to microwave a meal. I will have energy to call for help if I need it. I will have energy to pick up my cane. I will have energy to feed my cat tonight. I will have energy to take my meds .
#update later if this works !!!#it wont#I had sex yesterday which means I sacrificed all of my energy then and I have none today#chronic fatigue syndrome#cfs/me#chronic fatigue#chronic pain#chronic illness#chronically ill#disability#invisible disability
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i want to scrub all of my joints with steel wool and replace my cartilage with hot glue in hopes that maybe that will ease my pain for once in my life
#im so tired of this bullshit#im 17 i shouldnt have to be in so much pain because i decided to go to an arcade with friends for an hour#my body is slowly falling apart and i dont know how to fix it#chronic illness#chronicpain#chronic disability#other chronic illness bs#chronic disease#chronically ill#disabled#fibromyalgia#undiagnosed chronic illness#disablity#chronic disorder#chronic pain#chronic fatigue#undiagnosed chronic pain#joint pain#physical disability#invisible disability#disability#physically disabled#illness#invisible illness#autoimmine disease#invisible disease#cpunk#cripple life#crip punk#cripple problems
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Day 2 of YoSante Week!
Quiet/Travels
(Featuring my version of them in a modern setting/AU. Main style inspiration is from @/thegnarlyghost on Twitter.)
Sometimes you simply need to retreat into the wild, away from the bustling city life.
Bonus doodle: How Yone looks with his hair down and clarifying the thing he’s wearing is a medical eyepatch (he’s blind in the right eye).
Link to week’s prompts.:
#yosanteweek#yosante#kyone#couple#league of legends#league of art#art of legends#ksante#lol ksante#k’sante#lol k’sante#lol yone#yone windchaser#fandom event#my art#mixed media#digital#it was fun doing traditional line-art#well it’s more a sketch was meant to ink but realised I won’t make it in time#also yes that’s an nb bracelet on K’sante and they both have the invisible disability sunflower pin
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One thing I knew but wasn't really conscious of before getting my cane is the sheer extent of prejudice against young people with disabilities.
Like, bus drivers are more likely to lower tye bus for a 60 year old with no visible disabilities than for me with my cane. Same for people standing up to let me sit down. In fact in the many months I've been using a cane nobody has ever stood to allow me to sit without being directly asked. People will actively push in front of me. When I'm walking on the sidewalk, people will not move aside to let me pass, as if I'm supposed to walk/put my cane down on the grass (that is not how canes work you can't do that). One time some older customers at work joked about buying a lot of vitamins and pills and how "that's what it's like when you get old," and I joked back about how I must be old then, and they starrted furiously explaining how I didn't understand because I was "young and healthy." Most people at least remark on my cane, and every single time it's under the assumption that it's a temporary thing, that it's because of some kind of minor injury, etc.
It's just kind of crazy.
#i know this isn't news to people who have been visibly disabled for longer than me or especially people with invisible disabilities#but the sheer extent of it kinda shocked me#people really just don't take my cane seriously because i'm in my 20s#istg somebody asked me if it was an accessory#incoherent rambling#cane user
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